First 48 Hours on Hospice - Opt-In
What to expect. What to ask. What no one will tell you — until now.
A free guide from a 15-year hospice professional, built for the families who just heard the word "hospice" and have no idea what comes next. No spam. Just information.
8 sections. Plain language. Flip to the part you need right now — come back to the rest when you can breathe.
In the next 48 hours, you'll be expected to make decisions no one trained you to make. The comfort kit is on the counter. The paperwork is somewhere on the table. The phone won't stop. And you're standing there wondering what you're supposed to do first.
Most caregivers are asking the same questions right now:
"Should I give the morphine or wait?"
"What was I supposed to ask the admission nurse before she left?"
"Is what I'm seeing right now — normal, or do I need to call?"
Every family asks these. Almost no one is told the answers before they need them. This guide is — in plain language, in the order the questions will come up.
Print this list. Hand it to the nurse. Write down every answer. These are the questions most families don't think to ask until day three — when it's much harder to get a clear answer.
Word-for-word scripts for the conversations you didn't see coming — the family member who won't stop second-guessing the nurse, the relative who keeps asking "should we be doing more?", and the call to hospice you weren't sure you should make.
Eight things every caregiver is allowed to do that no one will tell you — sleep, eat, step out of the room, say no to a visitor. The bedside permissions that take years to learn, handed to you on day one.

During COVID, I was the only social worker covering more than 100 patients.
I sat at hundreds of kitchen tables with families exactly like yours. And after 15 years in healthcare, hospice, grief support, and caregiving, I heard the same sentence over and over again:
“I wish someone would have told me this sooner.”
Not after the funeral.
Not three days into a crisis.
Sooner.
Somewhere along the way, this stopped being only professional for me. I became a caregiver myself. I became the patient too.
That changed everything.
Because families deserve better than panic, guesswork, and trying to figure things out alone during the worst moments of their lives.
This is the guide I wish I could have handed every family at the door.
-Alyssa
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Family Protection Project provides educational resources and caregiver navigation support. Nothing here is medical, legal, or financial advice. Always consult qualified professionals for your specific situation.
"Because families deserve better than guesswork."
#SayTheThing
I share caregiver tools, scripts, and real demonstrations every day — the kind of bedside intelligence that doesn't fit inside a guide.
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